In this post, I want to write about my deepest thoughts about Lipedema and how it still affects me. About the feelings I have when I see women on the street who may have it and how I deal with the fact that Lipedema may come back.
So first of all, I want to answer the question I often got asked: Can removed Lipedema fat come back and am I afraid of it?
To be honest, I am sometimes afraid of it. I could see myself with children someday and I fear that Lipedema could break out again during my pregnancy. But this is not relevant right now. Someday, maybe, but of course those thoughts are still on my mind.
I am afraid of taking the birth control pill again. I stopped taking it about a month ago for a few different reasons, one of which is the fear that the pill could cause Lipedema to come back. Lipedema seems to occur during times of signficant hormonal shifts in women (puberty, pregnancy, and menopause) so obviously the idea of taking hormones again makes me worry. It is really complicated.
On bad days, I am even afraid of running. As many of you might know, I love running. So, it sometimes really annoyes me that I can‘t get my mind free of the fear that Lipedema will come back because of running. But on good days, my mind feels light and so does my body. The ability to move your body and be able to WALK, RUN or JUMP with your legs is the most fantastic feeling on this world, I think. I am blessed that I am able to do all of this. Many people cannot. So, I guess if having fear about Lipedema coming back is the worst thing I have to deal with, then I am more than happy.
Unfortunately, I cannot answer the question if Lipedema will come back for any of us post-surgery. It might or it might not, nobody knows. For me, it is way more important to encourage you to enjoy your life as much as you can, whether you have had liposuction or not.
And if you have had the surgery, absolutely make the best of it! (Well, I give that advice to everyone, liposuction or not.) I truly enjoy every day of my Lipedema free life. I soak it up! You may ask yourself why I call myself Lipedema free? I call myself that because I feel like I am. It’s all about a positive mindset! Reminding myself every day that I‘m Lipedema free, looking and feeling comfortable with my legs and confident in my body, is the key for me to free my mind of negative thoughts and worries about Lipedema. And no matter what anyone else says, don’t let outside opinions bother you. You decide how you feel about things! It is your life and your way. Try to stay positive, regardless.
And even if it comes back, you have already learned how to fight againgst it, so you will get through it again. I know that this would be a setback but you will get through it. Believe me!
What gives me a good feeling is that I am not alone with my story. Your stories also gave and give me hope, as my story may give you hope and courage. It motivates me that I am not only fighting for me, but for all the other women who suffer from it. You motivate me to hit the gym in the morning. I want to show you that you can kick Lipedema in the a**, with hard work and a positive mindset.
Second, I have learned to see Lipedema as my friend and companion. This may sound stupid but it’s not when you deeply think about it. What happens when you see something as a friend or as a companion? You will accept it as a part of your life and is a part of making you the person you are. It gives you a story. A story that is so unique, even if it means that you really have to suffer for a period of time. I suffered, too. But someday it will be worth it.
I want to be honest: I still suffer, when I see a woman walk past me, obviously having Lipedema legs. In that moment I‘m asking myself if she knows about her disease. If I should go over to her and tell her? But HOW? How do you tell somebody you don’t know that the reason for her heavy and lumpy legs is a disease called Lipedema? That I could save her from judging the shape of her legs, from blaming herself, and maybe help stop her suffering? I really struggle with this a lot. I have not found a way to deal with that yet. Maybe you have some experiences with it. Have you ever told a woman about your speculations why her legs are looking like this? If so, it would be really cool if you write me an email and tell me about it at lipedemablog@hotmail.com.
I wish I could pay for all women who suffer from Lipedema to get the special liposuction to treat it. Oh, how fanstatic would that be! But I can’t. Maybe someday when I am a millionare. Haha, just kidding. All I can do is to encourage you to fight, to give you hope with my story, to spread positive feelings about it and to give Lipedema a louder voice. This brings me to the point that there are already a lot of women on Instagram sharing their stories with Lipedema. I take my hat off to all of you, who have the courage to show the world their Lippy legs. You are amazing because by doing this you really give Lipedema a louder voice. And when it gets a louder voice, we bring other people to the table to help us tackle it. People would think twice when judging a woman for her shape and why her legs look like this!
As I bring this post to an end, I thank all of you who are sharing your stories on social media. June is Lipedema awareness month and I am happy that I could share my feelings about it in this post. I hope you liked it.
All my love to you,
Verena